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Matt

Amy,

(I will try and keep this short)

This time last year my pregnant wife and I found out our unborn daughter had a severe case of Spina Bifida. The doctors said she would not survive outside the womb for more than 4 hours.

I SCOURED the web for information and all I could find was top-down "thus sayeth us" websites that were outdated.

A year later, our beautiful little girl is thriving and is the light of our lives. Once things settled down, I became increasingly angry that, as a parent, I had to go through such informational torment in this day and age.

So I decided to do something about it. I started a blog www.sbguide.blogspot.com where people can go and get the info they need. So far we have people in 21 states willing to connect with other people effected by SB.

Our goal is to create a web presence that is part static, part chat room, part discussion board.

To me, the key to remember is "No one cares about your organization (I don't even care about my own org) - people care about themselves - meet the needs of the individuals and the organization thrives - focus on the organization and organization dies"

Adapt or die.

Steven

"No one cares about your organization (I don't even care about my own org) - people care about themselves - meet the needs of the individuals and the organization thrives - focus on the organization and organization dies"

This is true in some cases. However, it is important for non-profit organizations to differentiate between people's 'wants' and people's 'needs'. People do care about themselves more than they care about organizations, but sometimes what they want for themselves is not what they need for themselves and what they need for themselves is not what they want for themselves. Since most people don't know the difference between needs and wants it is important for non-profits to have that understanding and to work for communal needs even if it isn't what populace wants.

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